Eyeless mind : a memoir about seeing and being seen
(Book)

Includes bibliographical references.

In January of 2017, Stephanie Duesing discovered that her straight A honor student, genius artist, and water polo-playing son Sebastian was almost completely blind and no one knew, not even Sebastian himself. He was fifteen years old, and just getting ready to enroll in driver's ed. Filled with terror for her son's safety, overwhelmed at the guilt of not knowing that her own son was blind, and also utterly baffled at the impossibility of the situation, Stephanie embarks on a journey to find answers. Eyeless Mind is a story about perception and what we as individuals and as a society choose to see or not see. A modern Everyman, Stephanie battles an indifferent and obstructionist medical establishment that has collectively turned a blind eye to the needs of tens of thousands of people in the U.S. alone. Persevering against horrific medical malpractice and abuse from ignorant and untrained medical professionals, Stephanie makes a major medical discovery while exposing an enormous public health crisis affecting millions globally. --,Amazon.com